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FIONA752
#21 Posted : Wednesday, May 11, 2011 8:02:18 PM Quote
Rank: Advanced Member


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Joined: 12/4/2009
Posts: 312

Dear Sarah,
Hi! Sorry to hear you have R.A, but it
does sound like you may have Carpel Tunnel too!
I have had R.A for 16 years and also developed Carpel Tunnel syndrome.
I had them both operated on 8 months apart and the relief was tremendous.
I had the exact same symptoms you described.
A nerve conduction test will soon show whether you also have Carpel Tunnel syndrome and day and
night splints will help if you have, until they operate.
Or are your wrist/hand symptoms going now you have R.A treatment?
Best wishes,
Fiona


petti1
#22 Posted : Thursday, May 12, 2011 7:17:32 AM Quote
Rank: Advanced Member


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Joined: 4/16/2011
Posts: 36
Location: Northumberland
Hi Sarahd,

Like you, I have also just been diagnosed, on my 48th birthday too, nice present from the GP!!

I have only been posting for a week or so but I have found some excellent advice already, answers to questions and just general support for letting off steam. I was previously a nurse as well but know nothing about RA. I havent nursed now for over 15 years so act dumb and never tell them, that way I feel I can ask normal questions and get treated in laymans terms. Are you still working?

It is a hard disease to get your head around, normality goes out of the window as soon as diagnosis is made really. I take so many pills its ridiculous, and I havent even started my RA treatment yet!! Painkillers are the most important thing to help me through my working day. I wouldnt be able to work without them, but I dread the day I might need to give up work. Best not thinking about it really.

I hope you get some relief soon and get back to some relative normality soon. Petra xxx
LynW
#23 Posted : Saturday, May 14, 2011 1:09:11 AM Quote
Rank: Advanced Member

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Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
Hi Sarah

Welcome to the forum. A great place to be for support and information; lots of folk, lots of knowledge and a wealth of tried and tested experiences! Glad you have found us and NRAS!

I'm Lyn, married to Mike, we have four children (well I call them children but perhaps it's time to stop!), Abby 23, Ian and Jake 17, and Louis 16. All four in various stages of education! We live in Thornton Cleveleys in north west Lancashire. I was diagnosed with RA 23 years ago and have since run the gamut of medication and had lots of surgical procedures along the way. Currently on Enbrel, Leflunomide, Prednisolone and Naproxen, and a wagon load of pain killers! Struggling at the moment after knee surgery last summer, a major flare in Cyprus of all places, two lots of knee aspirations and joint injections in 7 weeks, a depo injection that didn't work and basically RA that has not been controlled for the last 12 months! But heyho... no-one said life with RA would be easy and all the lovely friends I have made make it very worthwhile (mostly!)

I'm likely to get shot down in flames for mentioning feet but do please request a referral to podiatry. The delicate bones of the feet can be very easily damaged by RA (been there, had the surgery!). It is worth getting your feet checked early on as any damage is usually irreparable. It may be necessary for you to be assessed for orthotic insoles to protect and support the feet. You only get the one pair of feet (at the moment at any rate Scared )so worth looking after them! A referral to Occupational Therapy would be useful too as specific splints for your hand/wrist problems may help those areas.

Look forward to getting to know you,

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

sarahd
#24 Posted : Sunday, May 15, 2011 12:28:35 AM Quote
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Joined: 4/15/2011
Posts: 19
Location: Orpington, Kent
Hi everyone and thank you all for your advice and replies. My GP has finally given me co-codamol.She said that I should wait until I'm on a more stable dose of methotrexate until I start on any anti-inflammatories. I'm currently on 17.5mg, increasing by 2.5 mg a week until i get to 25mg. Co-codamol doesnt seem to do much really. I suppose I'm lucky(?!!) in that I only have pain in my hands and feet but that's enough to be going on with I feel! I bought myself some hand splints to use at night and they have helped with the numbness from the carpal tunnel. I will ask for a referral to a podiatrist because my feet ache continually, even when I'm sitting down and feel like I've run a marathon in stilettos!!
I feel like I've done nothing but moan on here so sorry about that! I'm so glad I joined here though as everyone understands and sympathises. It's like we are all in our own world with RA! No-one in "my world" seems to understand and it's like if they can't see it then it doesn't exist. I'm especially finding this as regards fatigue. I think my boss thinks I'm becoming lazy but finishing a hard 9 & half hour shift at 10 pm wipes me out!! Especially as I have to get up the following morning at 5.45 to be back into work at 7am! I hope I can carry on with it though as I love my job. I will have to see how it goes. Luckily, I haven't had to have any time off sick yet.

Thanks again everyone!!Smile Smile Smile
Lorna-A
#25 Posted : Sunday, May 15, 2011 12:49:05 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2010
Posts: 914

Hi Sarah,

I am Lorna, married with 3 daughters. I have had RA for 3.5 years now, I was hit extremely hard at the start. Going down incredibly fast in the space of 5 weeks. It affected everywhere with me bar my knees. I ended up bedridden it was awful, not knowing what's going on and getting worse by the week was dire.

Good news is I'm back fit and really quite well (all things considered.) As mentioned above I am on the triple therapy have been since diagnosed and I am so much better now. I'm still on two of the drugs I was given MTX and HYDROX also folic acid once a week.

Keep in there you will turn the corner soon, try to be positive it really does help. Saying that I know it is so difficult when the pain is so bad. Nice you have found us and keep come on with more questions everyone has been where you are now, we all wear the same tee shirt. Smile

Nice to hear from you, keep a diary I did and it does help when you see yourself getting better.

Take care

Lorna x Smile
sarahd
#26 Posted : Saturday, May 21, 2011 1:08:23 PM Quote
Rank: Member

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Joined: 4/15/2011
Posts: 19
Location: Orpington, Kent
Hi all. I'm now up to 20mg a week. Should I feel any better by now do you think? My hands and feet are still painful and ache so much. I take 50 mg diclofenac and co- codamol now but no difference! Sorry to moan;-( Thanks.
sarahd
#27 Posted : Saturday, May 21, 2011 1:09:11 PM Quote
Rank: Member

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Joined: 4/15/2011
Posts: 19
Location: Orpington, Kent
Sorry, meant to say 20mg methotrexate a week.
Rose-B
#28 Posted : Saturday, May 21, 2011 3:48:20 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 4/20/2010
Posts: 1,749
Location: Somerset

Hello Sarah,

I am not on mtx now, but when I was on it they told me to expect a difference after 3 months,
not sure if that is still the same as that was nearly 3 yrs ago.

I am sure someone can let you know.

Good luck
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